A few years ago on this site I told the story of watching a short man emerge from a large truck and how my mother, seeing the same thing, saw a handicapped man and how I just did NOT see the handicap. On the contrary, I saw resourcefulness in a world that was not built for his height. (And that if it were built to his height, well then, we’d be the ‘handicapped’ ones.)
I remember also a time when my sister, who had ALS, was confined to a wheelchair and the looks of outright peeved annoyance as I rolled her about some store or other, taking up, I guess, more room in the aisles than ‘normal’ people. I was shocked by these looks and later wondered if the people giving them were possibly the same people who, in a different situation, one that wasn’t inconveniencing them, looked at my sister with pity and prided themselves on their ‘compassion’, which probably more often than not translated into gratefulness for not being her.
My sister was also asked to please not attend the wedding of a close family friend (formerly close) because her wheelchair and generally emaciated and twisted appearance and inability to talk in anything more than grunts and slurs, was not the vibe the general wedding decor/party/event was going for.
All this, and more, comes to mind after reading Falling for Myself, by Dorothy Ellen Palmer, a memoir that addresses ableism and judgement and what Stella Young termed Inspiration Porn, (a reference to the way the disabled are treated differently, referred to as ‘inspiring’, and used to make the so-called ‘normal’ people feel better about themselves for a) not being disabled, and b) being ‘kind’ to those who are.
“In inspiration porn, the disabled person is reduced to the object, the silent prop. The heroic captain of the football team leans down and asks ‘a wheelchair girl’ to prom. A brave tech entrepreneur takes the ‘risk’ to hire a disabled programmer. A mega-millionaire basketball star drops by with cameras and has lunch, once, for ten minutes, with a bullied, autistic child. In inspiration porn, the abled person is the hero; the disabled person is the second banana, the sidekick.”
Inside the cover (cleverly designed as an accessibility sign) Palmer writes from the place of someone who was born with the challenge of walking and staying upright. Her feet, as an adult, are size one and half, and two and half. She has given each foot a name. She also names her walking tools, her crutches, etc. She has done/continues to do much in her life as a teacher, activist, union executive, writer, and member of the Accessibility Advisory Committe of the Festival of Literary Diversity (FOLD). For starters. She is also a daughter and mother and citizen of a city and country that (like so many cities and countries) needs to take a look at how public spaces are built in order to accommodate both the disabled and able bodied equally.
Because the current tokenism that exists in the form of a designated parking space that is used by people who are not disabled and who justify that use since they’re only going to be a minute …. ditto that one wheelchair accessible stall in the loo… and a host of other issues knowable only to those who use chairs and walkers, who have impaired vision or hearing… isn’t going to cut it.
In a very conversational way, through frustration in the form of humour, Palmer sheds light on an issue that shouldn’t exist, but instead is sadly ubiquitous, and which stays hidden due to inspiration porn, ableism and much of the world patting itself on the back for NOT taking that parking spot.
Essentially, the book is about how she lives as a woman… also how she lives as a woman with a disability. Apparently in our society these are two separate things. It’s also about how (by the way) the disabled are very often content in their bodies… it’s the rest of the world that’s a bit of a challenge.
“We all need to stop falling for the double lie that disabled people can be healed and should want to be healed.“
And if anyone reading this says well, heck, are we supposed to accommodate everybody??? The answer is a resounding YES. Because that would be the kind of progress that would actually benefit all of society, not just those who stand to make a profit from so-called ‘progress’.
Would love to see this as required reading in schools.